Digital Health Systems

Digital health systems promise to improve and transform healthcare but what is the evidence of what actually works and what are the ongoing policy discussions for how to implement change that delivers positive benefits?

This Collection is part of a Linkage, Infrastructure, Equipment and Facilities (LIEF) project LE180100094 Linked semantic platforms for social and physical infrastructure and wellbeing funded by the Australian Government, through the Australian Research Council.

Content Expert Advisers

Professor Penelope Schoefield

Professor Ian Olver, University of South Australia

Digital Health Systems

Research report

18 Oct 2018

The My Health Record (MHR) system is an online folder of summary documents relating to a healthcare recipient's health that can be controlled by the individual. MHR can be used to record information such as allergies, blood test results or medical conditions a person has...

Conference paper

The Consumer Opinions about Research Data Sharing (CORDS) study
18 Oct 2018

Background

Health data which is routinely collected during the course of patient care, is a valuable resource to the advancement of research and can be an effective and efficient alternative to performing large-scale and costly clinical studies. Together with the growing capabilities of...

Briefing paper

16 Oct 2018

The MHR (My Health Records) Act establishes a complex regulatory framework for the use, collection and disclosure of the health information included in a healthcare recipient’s My Health Record.

Guide

Backgrounder, Community Brochure, FAQ
12 Oct 2018

The All of Us Research Program is a large "precision medicine' research program funded through the National Institutes of Health in the United States. The target is to have 1 million participants in the program, who are living in the United States.

The community...

Research report

2 Oct 2018

This survey report found that consumers want support in finding accurate, effective smartphone apps for health and wellness, and they should be subject to an authoritative regulatory system that rates them for efficacy.

Journal article

27 Sep 2018

This article summarises a new framework to improve the success of technology projects: the nonadoption, abandonment, scaleup, spread and sustainability (NASSS) framework.

Video

The hype. The hope. The real-world impact
14 Sep 2018

This archived webinar recording is led by the STAT national correspondent Casey Ross.

The use of artificial intelligence in health care is exploding. Hospitals, drug companies and researchers are racing to make use of its newest iterations, but rapid adoption is outpacing our ability...

Research report

5 Sep 2018

This resource aims to shine a light on how qualitative methods are being used in health services and medical research contexts, and how they might be used more effectively.

Video

OECD Blockchain Policy Forum - Paris 2018
4 Sep 2018

The blockchain is not a policy or a regulation, but a tool to standardise the regulatory process that serves the policy purposes better. A blockchain provides guidelines to help policymakers to respond to rapid changes in technologies, etc.

The forum is about a strategic...

Research report

29 Aug 2018

Digital inclusion is based on the premise that everyone should be able to make full use of digital technologies – to manage their health and wellbeing, access education and services, organise their finances, and connect with friends, family, and the world beyond.

Bill

Explanatory memorandum
22 Aug 2018

This explanatory note provides background to the My Health Records Amendment (Strengthening Privacy) Bill 2018.

The Bill will amend the My Health Records Act 2012 (MHR Act) to strengthen the privacy framework of the My Health Record system.

The Bill will specifically:...

Research report

A report of a citizens’ jury designed to explore when it is reasonable for patients to expect patient data to be shared
13 Aug 2018

Introduction

On 17 January 2018, 18 people gathered at Friends’ Meeting House in Manchester and began a three-day “citizens’ jury”. The task for these citizens was to tackle a set of jury questions. The questions were designed to test a number of scenarios...

Blog post

26 Jul 2018

This FlagPost was originally published on 24 July 2018. It has since been amended to reference the provisions of the Privacy Act 1988 relevant to the release of health information by private medical practitioners. As an adjunct task, it has also been updated to reflect...

Commentary

16 Jul 2018

Unless you take action to remove yourself from the My Health Record (MHR) system, the federal government will make a digital copy of your medical record, store it centrally, and, as the default, provide numerous people with access to it.

Commentary

16 Jul 2018

The My Health Record (MHR) system promises to make Australia a leader in providing citizens with access to their own health records.

Audio

13 Jul 2018

Unless you opt-out by mid-October, the Federal Government will create an online record of your health details that it can access for the rest of your life and beyond - even if you ask for it to be deleted. Privacy advocates are warning people to...

Research report

How Australia will deliver the benefits of digitally enabled health and care
2 Jul 2018

The framework for action is the implementation plan for the National Digital Health Strategy and details how all those in the digital health ecosystem are working together to help empower people, and those who care for them, with modern digital services and products.

Research report

The Lord Darzi Review of health and care: final report
15 Jun 2018

This final report of the Lord Darzi Review puts forward a 10-point plan to achieve this, as well as a 10-point offer to the public which sets out what the health and care system will be able to offer if this plan for investment and...

Research report

13 Jun 2018

Digital health technology has the potential to transform the way we deliver and receive health and social care. Advances in digital technology provide a tangible opportunity to improve health care quality, consumer outcomes and experience.

Audio

15 May 2018

The federal government is pushing ahead with its plans to create an electronic health record for every Australian, but many are concerned about privacy and cybersecurity risks - and one expert recommends opting out.