Data collection



Working paper

In whose interest? Why businesses need to keep consumers safe and treat their data with care

Australia’s privacy laws rely on notification and consent as the primary means of protecting consumers. The onus is on consumers to navigate complex privacy protections in a continuously complex digital economy. The author of this paper argues that it's time to consider reforms that hold...
Policy report

Emerging privacy-enhancing technologies: current regulatory and policy approaches

This report examines privacy-enhancing technologies (PETs), which are digital solutions that allow information to be collected, processed, analysed and shared while protecting data confidentiality and privacy. The report reviews recent technological advancements and evaluates the effectiveness of different types of PETs, as well as the...
Briefing paper

General Practice Data for Planning and Research: summary of a private roundtable

This paper summarises a roundtable discussion held in the UK in the summer of 2022 about General Practice Data for Planning and Research (GPDPR), a data- sharing initiative that the NHS launched in 2021.
Report

Navigating the crisis: how governments used intelligence for decision making during the COVID-19 pandemic

This report examines how governments — and the societies around them — mobilised intelligence to handle the COVID-19 pandemic and its effects. It also makes recommendations as to how they could improve their ability to organise intelligence for future challenges of all kinds, from pandemics...
Report

Investigating enhancements of Indigenous data in suicide-relevant data sets

Accurate and timely data about suicide and suicidal behaviour of Indigenous Australians are important to measure progress against Closing the Gap Target 14. Through a desktop review and consultation with stakeholders, this report found a high degree of complexity in the process of classifying, coding...
Report

Data trust and data privacy: a brake on the data and digital dividend?

Data is increasingly available at scale and many of the fastest growing companies are built on data and data analytics. This paper reports data on Australian’s attitudes to data trust and data privacy and how these have changed since October 2018 using data from the...
Report

Consumer data right: non-bank lending sectoral assessment - final report

The Consumer Data Right (CDR) currently applies to the banking, energy and telecommunication sectors. This assessment report recommends the designation of the non‑bank lending sector for the CDR.
Report

Next steps: pan-Canadian health data strategy

This report highlights key outcomes and discussion threads from a roundtable of experts who discussed next steps to build a pan-Canadian health data strategy.
Report

Reporting on the health of culturally and linguistically diverse populations in Australia: an exploratory paper

This report explores the use of linked data to report on the health of culturally and linguistically diverse (CALD) populations, including its benefits, challenges and limitations. It investigates each of the available CALD variables individually, using three health outcomes to explore differences between CALD groups...
Working paper

Decentralising data governance: Decentralised Autonomous Organisations (DAOs) as data trusts

This paper explores the idea that Decentralised Autonomous Organisations (DAOs) are a new type of data trust for decentralised governance of data.
Report

Australia’s data-enabled research future: health and medical sciences

This report argues that in order to capitalise on the opportunities to improve health and make use of the ever-increasing volume of health data, Australia must develop an environment that enables the safe and secure use of patient data for legitimate research purposes – balanced...
Report

Australia’s data-enabled research future: the social sciences

The aim of this project was to identify recent developments, opportunities, and priority gaps in Australia’s social science research data ecosystem.
Report

Australia’s data-enabled research future: synthesis report

In 2021, the ARDC partnered with Australia’s five Learned Academies and ACOLA to engage Australia’s greatest minds, the Fellows of the Academies, to develop insights into ensuring all of Australia’s research sector can undertake excellent data-enabled research. This document identifies the key findings from across...
Report

Australia’s data-enabled research future: humanities

This report provides an overview of the current landscape for humanities data-enabled research and identifies strategic needs and requirements, gaps in infrastructure, and potential opportunities for leadership, advocacy, and planning.
Report

Australia’s data-enabled research future: technology and engineering

This project is the result of a partnership between the ARDC, Australia’s five Learned Academies and ACOLA, to ensure Australia can undertake excellent data-enabled research across all fields of research.
Report

A future built on data: data strategies, competitive advantage and trust

In the twenty-first century, data became the subject of national strategy. This paper examines these visions and strategies to better understand what policy-makers hope to achieve.
Report

Biodiversity data: leading the digital journey

Since 2016, The Western Australian Biodiversity Science Institute (WABSI) has led a strong collaboration of senior stakeholders from industry, government, regulators and the science community, to build a data sharing and access culture. This document highlights the digital journey and the achievements that are helping...
Report

America's 5G era: balancing big data and privacy

Concurrently with the adoption of 5G technology, the number of automated sensors and devices connected to wireless networks will continue to grow in the next few years. Increasingly, these networks will inform artificial intelligence algorithms, which will then autonomously make decisions and take actions—with human...
Working paper

Defining and contextualising regulatory oversight and co-ordination

This paper aims to support better-targeted and more homogeneous data collection and comparative analysis of regulatory oversight bodies (ROBs). To do so, it builds on relevant academic literature and available data to sharpen the definition of ROB used in OECD analytical work and policy discussions.
Interactive resource

Australian News Index

The Public Interest Journalism Initiative is collecting information about news producers from all around Australia. The Australian News Index is intended to help communities, researchers and policy-makers access and use their data.
Briefing paper

Ensuring the quality of palliative care in Australia’s prisons

Australia’s prison population is growing and ageing, which is placing an increasing burden on the provision of healthcare in prison. This paper highlights the significant gap in national data about all elements of palliative care need and provision in prisons, and describes how data collection...
Report

Optimizing analytics for policymaking and governance

This review draws on a survey of professionals working in and with federal agencies to develop a more comprehensive understanding of how the government uses analytics, the outcomes of these efforts, and the challenges agencies face in their work to further develop analytical capabilities.
Position paper

Lowitja Institute 2022 federal election priorities

In the lead-up to the 2022 federal election, the Lowitja Institute is calling on the incoming Australian government and federal Parliament to prioritise the health and wellbeing of Aboriginal and Torres Strait Islander communities.
Discussion paper

Getting ahead of the game: athlete data in professional sport

This discussion paper aims to ignite a conversation about the current reality that Australian professional sports are collecting extraordinary amounts of personal information about athletes. Concerningly, this data—which is continuous, personal, sensitive, and can be intimately revealing—amounts to excessively more information than has been shown...
Discussion paper

National data security action plan: discussion paper

This discussion paper focuses on policy settings for state and territory governments, businesses and the broader economy and is seeking views as to how the Australian Government can best achieve data security uplift at a national level.