Data collection
NARROWER TERMS
Working paper
In whose interest? Why businesses need to keep consumers safe and treat their data with care
Australia’s privacy laws rely on notification and consent as the primary means of protecting consumers. The onus is on consumers to navigate complex privacy protections in a continuously complex digital economy. The author of this paper argues that it's time to consider reforms that hold...
Policy report
Emerging privacy-enhancing technologies: current regulatory and policy approaches
This report examines privacy-enhancing technologies (PETs), which are digital solutions that allow information to be collected, processed, analysed and shared while protecting data confidentiality and privacy. The report reviews recent technological advancements and evaluates the effectiveness of different types of PETs, as well as the...
Briefing paper
General Practice Data for Planning and Research: summary of a private roundtable
This paper summarises a roundtable discussion held in the UK in the summer of 2022 about General Practice Data for Planning and Research (GPDPR), a data- sharing initiative that the NHS launched in 2021.
Report
Navigating the crisis: how governments used intelligence for decision making during the COVID-19 pandemic
This report examines how governments — and the societies around them — mobilised intelligence to handle the COVID-19 pandemic and its effects. It also makes recommendations as to how they could improve their ability to organise intelligence for future challenges of all kinds, from pandemics...
Report
Investigating enhancements of Indigenous data in suicide-relevant data sets
Accurate and timely data about suicide and suicidal behaviour of Indigenous Australians are important to measure progress against Closing the Gap Target 14. Through a desktop review and consultation with stakeholders, this report found a high degree of complexity in the process of classifying, coding...
Report
Data trust and data privacy: a brake on the data and digital dividend?
Data is increasingly available at scale and many of the fastest growing companies are built on data and data analytics. This paper reports data on Australian’s attitudes to data trust and data privacy and how these have changed since October 2018 using data from the...
Report
Consumer data right: non-bank lending sectoral assessment - final report
The Consumer Data Right (CDR) currently applies to the banking, energy and telecommunication sectors. This assessment report recommends the designation of the non‑bank lending sector for the CDR.
Report
Next steps: pan-Canadian health data strategy
This report highlights key outcomes and discussion threads from a roundtable of experts who discussed next steps to build a pan-Canadian health data strategy.
Report
Reporting on the health of culturally and linguistically diverse populations in Australia: an exploratory paper
This report explores the use of linked data to report on the health of culturally and linguistically diverse (CALD) populations, including its benefits, challenges and limitations. It investigates each of the available CALD variables individually, using three health outcomes to explore differences between CALD groups...
Working paper
Decentralising data governance: Decentralised Autonomous Organisations (DAOs) as data trusts
This paper explores the idea that Decentralised Autonomous Organisations (DAOs) are a new type of data trust for decentralised governance of data.
Report
Australia’s data-enabled research future: health and medical sciences
This report argues that in order to capitalise on the opportunities to improve health and make use of the ever-increasing volume of health data, Australia must develop an environment that enables the safe and secure use of patient data for legitimate research purposes – balanced...
Report
Australia’s data-enabled research future: the social sciences
The aim of this project was to identify recent developments, opportunities, and priority gaps in Australia’s social science research data ecosystem.
Report
Australia’s data-enabled research future: synthesis report
In 2021, the ARDC partnered with Australia’s five Learned Academies and ACOLA to engage Australia’s greatest minds, the Fellows of the Academies, to develop insights into ensuring all of Australia’s research sector can undertake excellent data-enabled research. This document identifies the key findings from across...
Report
Australia’s data-enabled research future: humanities
This report provides an overview of the current landscape for humanities data-enabled research and identifies strategic needs and requirements, gaps in infrastructure, and potential opportunities for leadership, advocacy, and planning.
Report
Australia’s data-enabled research future: technology and engineering
This project is the result of a partnership between the ARDC, Australia’s five Learned Academies and ACOLA, to ensure Australia can undertake excellent data-enabled research across all fields of research.
Report
A future built on data: data strategies, competitive advantage and trust
In the twenty-first century, data became the subject of national strategy. This paper examines these visions and strategies to better understand what policy-makers hope to achieve.
Report
Biodiversity data: leading the digital journey
Since 2016, The Western Australian Biodiversity Science Institute (WABSI) has led a strong collaboration of senior stakeholders from industry, government, regulators and the science community, to build a data sharing and access culture. This document highlights the digital journey and the achievements that are helping...
Report
America's 5G era: balancing big data and privacy
Concurrently with the adoption of 5G technology, the number of automated sensors and devices connected to wireless networks will continue to grow in the next few years. Increasingly, these networks will inform artificial intelligence algorithms, which will then autonomously make decisions and take actions—with human...
Working paper
Defining and contextualising regulatory oversight and co-ordination
This paper aims to support better-targeted and more homogeneous data collection and comparative analysis of regulatory oversight bodies (ROBs). To do so, it builds on relevant academic literature and available data to sharpen the definition of ROB used in OECD analytical work and policy discussions.
Interactive resource
Australian News Index
The Public Interest Journalism Initiative is collecting information about news producers from all around Australia. The Australian News Index is intended to help communities, researchers and policy-makers access and use their data.
Briefing paper
Ensuring the quality of palliative care in Australia’s prisons
Australia’s prison population is growing and ageing, which is placing an increasing burden on the provision of healthcare in prison. This paper highlights the significant gap in national data about all elements of palliative care need and provision in prisons, and describes how data collection...
Report
Optimizing analytics for policymaking and governance
This review draws on a survey of professionals working in and with federal agencies to develop a more comprehensive understanding of how the government uses analytics, the outcomes of these efforts, and the challenges agencies face in their work to further develop analytical capabilities.
Position paper
Lowitja Institute 2022 federal election priorities
In the lead-up to the 2022 federal election, the Lowitja Institute is calling on the incoming Australian government and federal Parliament to prioritise the health and wellbeing of Aboriginal and Torres Strait Islander communities.
Discussion paper
Getting ahead of the game: athlete data in professional sport
This discussion paper aims to ignite a conversation about the current reality that Australian professional sports are collecting extraordinary amounts of personal information about athletes. Concerningly, this data—which is continuous, personal, sensitive, and can be intimately revealing—amounts to excessively more information than has been shown...
Discussion paper
National data security action plan: discussion paper
This discussion paper focuses on policy settings for state and territory governments, businesses and the broader economy and is seeking views as to how the Australian Government can best achieve data security uplift at a national level.