End of life care
It is intended that this publication will serve to increase the accessibility of valuable evidence and experiences to policy-makers within Australia. The University of Queensland and the Winston Churchill Memorial Trust also hope that it will encourage more partnership approaches toward developing public policy that...
This research explores the health and well-being needs, expectations and priorities of older Victorians at six key stages in later life. The report was prepared for the Victorian Health Department.
This publication brings together critical perspectives on voluntary assisted dying itself, and on various practices adjacent to it, including questions of state power, population ageing, the differential treatment of human and non-human animals at the time of death, the management of health care processes through...
This toolkit, developed in collaboration with Health Consumers Queensland, gathers insights and perspectives from Aboriginal and Torres Strait Islander peoples living in Queensland on engagement and consultation processes in relation to palliative care.
As the world continues to combat the COVID-19 pandemic, there is an emerging need for bereavement support at a critical level. This report finds that online spaces are a crucial cornerstone of support to people grieving and people at the end of their life, providing...
The Death Literacy Index (DLI) provides a means to measure and research public health palliative care initiatives, including those under the umbrella of Compassionate Communities, by exploring the ways in which community members’ knowledge and practice are enhanced through these initiatives. This report provides an...
Cancer care in the time of COVID-19: a conceptual framework for the management of cancer during a pandemic
This conceptual framework uses published data and guidance to explore system-wide approaches to cancer management during the COVID-19 pandemic. The framework is intended as a useful resource for cancer organisations, health professionals, medical colleges and policy-makers.
This report calls for an overhaul of the palliative care system in Australia, including an additional annual investment of just over $350 million, which will result in a saving of over $450 million across the broader health care system every year.
Patterns of health service use by people with dementia in their last year of life: New South Wales and Victoria
This report examines the health services usage of people with dementia in their last year of life and the findings have important implications for Australia’s health and aged care systems.
This article in describes the development and implementation of the Far West NSW Palliative and End-of-Life Model of Care, a systematic solution that could drive improvement in the provision of a quality palliative approach to care and support from any clinician in a timely manner...
Passing on wisdom: exploring the end-of-life wishes of Aboriginal people from the midwest of Western Australia
This journal article brings together insights gained through two different types of discussion about dying and end-of-life wishes with Aboriginal people.
Factors associated with non-beneficial treatments in end of life hospital admissions: a multicentre retrospective cohort study in Australia
This paper presents the first statistical modelling results to assess the factors associated with non-beneficial treatment (NBT) in hospital, beyond an intensive care setting. The findings highlight potential areas for intervention to reduce the likelihood of NBTs.
This paper calls for more education and support to encourage the creation of advance care plans for people diagnosed with dementia to be paramount. It emphasises the need for the planning and communication with health professionals and family about the plan, to occur early –...
Prospective multicentre cross-sectional audit among older Australians accessing health and residential aged care services: Protocol for a national advance care directive prevalence study
This study aims to determine the prevalence of ACDs in records of older people in Australian hospitals, aged care facilities and general practices.
Should doctors fear legal sanction for using opioids at the end of life? A perfect storm arises from a rare confluence of adverse meteorological factors, and is a metaphor for an especially bad situation caused by a combination of unfavourable circumstances. Health care at the...
Oxfam New Zealand’s Advocacy and Campaigns Director, Joanna Spratt, finds there is scarce literature on palliative care in Pacific island countries and territories, but the documented disease profile shows a need for expanded palliative care as well as more funding; leadership; support training, coaching and...
This review is a five‐year revisit of the 2013 report, Improving end of life care for South Australians. That report was a midpoint examination of the implementation of South Australian Health's Palliative care services plan 2009‐16, which outlined the South Australian government’s commitment to expand...
Australia’s population is ageing and with this trend comes the burden and complexity of increasing physical illness and disability. This burden escalates as a person nears death and as a consequence, the cost of care becomes disproportionately high in the last year of life. Currently...
Incidence, duration and cost of futile treatment in end-of-life hospital admissions to three Australian public-sector tertiary hospitals: a retrospective multicentre cohort study
The aims of this study are to estimate the incidence and duration of futile treatment in end-of-life hospital admissions and to assign a monetary value to the hospital bed days that were used.
This NSW Auditor-General audit report finds that there is no overall policy framework for palliative and end-of-life care in the state, nor is there comprehensive monitoring and reporting on services and outcomes.