End of life care

ALTERNATIVE LABELS
End-of-life care


Policy report

Policy futures: a reform agenda

It is intended that this publication will serve to increase the accessibility of valuable evidence and experiences to policy-makers within Australia. The University of Queensland and the Winston Churchill Memorial Trust also hope that it will encourage more partnership approaches toward developing public policy that...
Report

What do older people want from their healthcare?

This research explores the health and well-being needs, expectations and priorities of older Victorians at six key stages in later life. The report was prepared for the Victorian Health Department.
Book

Voluntary Assisted Dying: Law? Health? Justice?

This publication brings together critical perspectives on voluntary assisted dying itself, and on various practices adjacent to it, including questions of state power, population ageing, the differential treatment of human and non-human animals at the time of death, the management of health care processes through...
Guide

Yarning about sad news and sorry business

This toolkit, developed in collaboration with Health Consumers Queensland, gathers insights and perspectives from Aboriginal and Torres Strait Islander peoples living in Queensland on engagement and consultation processes in relation to palliative care.
Report

The Internet and end of life

As the world continues to combat the COVID-19 pandemic, there is an emerging need for bereavement support at a critical level. This report finds that online spaces are a crucial cornerstone of support to people grieving and people at the end of their life, providing...
Report

Death Literacy Index: a report on its development and implementation

The Death Literacy Index (DLI) provides a means to measure and research public health palliative care initiatives, including those under the umbrella of Compassionate Communities, by exploring the ways in which community members’ knowledge and practice are enhanced through these initiatives. This report provides an...
Strategy

Cancer care in the time of COVID-19: a conceptual framework for the management of cancer during a pandemic

This conceptual framework uses published data and guidance to explore system-wide approaches to cancer management during the COVID-19 pandemic. The framework is intended as a useful resource for cancer organisations, health professionals, medical colleges and policy-makers.
Report

Investing to save: the economics of increased investment in palliative care in Australia

This report calls for an overhaul of the palliative care system in Australia, including an additional annual investment of just over $350 million, which will result in a saving of over $450 million across the broader health care system every year.
Report

Patterns of health service use by people with dementia in their last year of life: New South Wales and Victoria

This report examines the health services usage of people with dementia in their last year of life and the findings have important implications for Australia’s health and aged care systems.
Journal article

Improving palliative and end-of-life care for rural and remote Australians

This article in describes the development and implementation of the Far West NSW Palliative and End-of-Life Model of Care, a systematic solution that could drive improvement in the provision of a quality palliative approach to care and support from any clinician in a timely manner...
Journal article

Passing on wisdom: exploring the end-of-life wishes of Aboriginal people from the midwest of Western Australia

This journal article brings together insights gained through two different types of discussion about dying and end-of-life wishes with Aboriginal people.
Journal article

Factors associated with non-beneficial treatments in end of life hospital admissions: a multicentre retrospective cohort study in Australia

This paper presents the first statistical modelling results to assess the factors associated with non-beneficial treatment (NBT) in hospital, beyond an intensive care setting. The findings highlight potential areas for intervention to reduce the likelihood of NBTs.
Discussion paper

Dying well: improving palliative and end of life care for people with dementia

This paper calls for more education and support to encourage the creation of advance care plans for people diagnosed with dementia to be paramount. It emphasises the need for the planning and communication with health professionals and family about the plan, to occur early –...
Journal article

A perfect storm: fear of litigation for end of life care

Should doctors fear legal sanction for using opioids at the end of life? A perfect storm arises from a rare confluence of adverse meteorological factors, and is a metaphor for an especially bad situation caused by a combination of unfavourable circumstances. Health care at the...
Report

Palliative care in the Pacific: initial research

Oxfam New Zealand’s Advocacy and Campaigns Director, Joanna Spratt, finds there is scarce literature on palliative care in Pacific island countries and territories, but the documented disease profile shows a need for expanded palliative care as well as more funding; leadership; support training, coaching and...
Case study

Revisit review of South Australia’s Palliative Care Services Plan 2009-16

This review is a five‐year revisit of the 2013 report, Improving end of life care for South Australians. That report was a midpoint examination of the implementation of South Australian Health's Palliative care services plan 2009‐16, which outlined the South Australian government’s commitment to expand...
Briefing paper

Integrated information networks to support end-of-life care in general practice

Australia’s population is ageing and with this trend comes the burden and complexity of increasing physical illness and disability. This burden escalates as a person nears death and as a consequence, the cost of care becomes disproportionately high in the last year of life. Currently...
Report

Planning and evaluating palliative care services in NSW

This NSW Auditor-General audit report finds that there is no overall policy framework for palliative and end-of-life care in the state, nor is there comprehensive monitoring and reporting on services and outcomes.