These detailed guidelines are supplemented with higher level recommendations aimed at the other stakeholder groups who need to work together with the researchers and data stewards to realise the timely and open sharing of research data as a key component of pandemic preparedness and response.
My Health Record is an online electronic summary of a person’s health information. The Australian government invested $1.15 billion in the development of the system and other digital health infrastructure between 2012 and 2016. The objective of this audit was to assess the effectiveness of...
In this interview, Phillip Adams talks to Julia Powles, Associate Professor of Law and Technology at the University of Western Australia, about Google's latest aspirations for entering the global healthcare market.
AMSANT submission on the National Primary Health Care Data Asset discussion paper - The Australian Institute of Health and Welfare (AIHW)
Aboriginal Medical Services Alliance Northern Territory (AMSANT)'S submission to the National Primary Health Care Data Asset (NPHCDA). This submission focuses on the need for strong protection of the rights and interests of Indigenous people in relation to their health data.
This guide has been written to help health services providers — from doctors and private sector hospitals, through to allied health professionals, pharmacists, childcare centres and gyms —understand their obligations under the Privacy Act 1988, and embed good privacy in their practice.
This snapshot is inspired by the initiation of the Digital Health Literacy program being piloted for the Australian Digital Health Agency between July and December 2019. This program will deliver training to support people to improve their digital health literacy, including how to find quality...
This paper discusses why this is a particular moment for the NHS and Genomics England (GE), as they structure the commercial relationships with companies accessing the 100K Genomes database.
The Estonian eHealth Strategic Development Plan 2020 is part of the activity plan of the Government of the Republic 2014– 2015. It focuses on particular eHealth specific choices and activities the realisation of which is feasible between 2015-2020.
The Department of Human Services (DHS) is under scrutiny this week after the Nine papers revealed the department sent letters to 50,000 patients who were previously prescribed lithium. DHS was seeking to recruit the recipients into a non-government study on bipolar disorder.
This aim of this report is to improve care experienced by pregnant women and their babies by developing standards for a digital maternity record to allow clinical information to be recorded, exchanged and accessed consistently across care settings.