Consumer and community participation


31 Jul 2019

The report defines the digital health information that should be shared, by consulting widely with people who use services, health and care professionals. The consultation was conducted across the four nations, because the information needed to provide safe, high quality care should follow the person...

Blog post

17 Jul 2019

The chief digital officer of NHS Digital discusses efforts to make NHS information more easily accessible in the digital age. The blog post also addresses concerns around patient data being shared with Amazon under an initiative to make verified healthcare data accessible via the Alexa...

Journal article

14 Jun 2018

This research was conducted to ensure that the contribution of patients and consumers in health research is better understood, respected and fully utilised.

Policy report

1 Jul 2016

Recommendations to strengthen security of health and care information and ensure people can make informed choices about how their data is used.



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