The Death Literacy Index (DLI) provides a means to measure and research public health palliative care initiatives, including those under the umbrella of Compassionate Communities, by exploring the ways in which community members’ knowledge and practice are enhanced through these initiatives. This report provides an overview of the concept of death literacy and the development...

Over 200 primary carers, and members of formal and informal caring networks across Australia, were interviewed for this study on end of life at home care. They participated in individual carer interviews and focus groups in eight urban and regional locations.