This report considers how people with lived experience, including those from diverse backgrounds and communities, can be co-collaborators in research. The authors explore research methods and tools that others might like to draw from and add to, identifying key elements and practices consistent with a participatory approach.

Data is increasingly used to direct services, secure funding and influence policy. However, for the disability community in Australia, access to high quality data is significantly lacking. This report captures the perspectives of 40 members of the disability community to the idea of a National Disability Data Asset (NDDA) in Australia.