Person
Julian Trollor
Journal article
A narrative review of inclusive research practices
This narrative review discusses the value of inclusive research which involves collaboration with people with intellectual disability. It describes current practices and strategies whilst identifying and analysing gaps in knowledge, including the need for a uniform curriculum for inclusive research training.
Journal article
Life expectancy of people with intellectual disability
People with intellectual disability in NSW have a much shorter life expectancy, averaging 67 years – 16 years below the state average. Outcomes are even poorer for people with Down syndrome, whose life expectancy is about 54 years. These findings reveal major health inequities and emphasise the need for targeted health, social and systemic interventions.
Journal article
Accessibility of Australian government online cancer screening information for people with intellectual disability
This article reports on the accessibility of online public health campaigns such as Australian cancer screening programs for people with intellectual disability. A range of accessibility issues were found, demonstrating that government public health initiatives need to make improvements to ensure they meet the communication and information rights of people with intellectual disability and reduce...
Journal article
Barriers to healthcare for Australian autistic adults
Australian autistic adults face substantial barriers to healthcare. Understanding these barriers provides an opportunity to develop approaches to improve access; such as co-designing a healthcare access roadmap for autistic adults, with co-designed policies and practices which advocate for the needs of autistic adults.
Report
Australian longitudinal study of autism in adulthood (ALSAA)
This study aimed to explore experiences of support after adulthood autism diagnosis. This mixed-methods survey study of 137 adults, found that most common formal supports received were counselling and mental health. Common unmet support needs were sensory sensitivities and accessing other services. Cost, lack of information, and fear of not being taken seriously were common...