Data collection platforms
Briefing paper
Value based health care: setting the scene for Australia
A value-based approach to health care provides a patient-centric way to design and manage health systems. This briefing paper considers Australia’s alignment with a value-based approach and identifies important enablers that are already present, but outside a coordinated national strategy.
Report
Health at the centre: responsible data sharing in the digital society
In this report, the Rathenau Instituut investigates examples of digital services that enable patients and healthy people to share data with a view to improving their health.
Report
A day in the life of data: removing the opacity surrounding the data collection, sharing and use environment in Australia
The Fourth Industrial Revolution is here, and personal information is increasingly being collected and commodified while legislation fails to keep up. This report illustrates the bewildering volume and scope of data collected about consumers as they go about their daily lives.
Report
Security of patients' hospital data
Victorian health services are increasingly using information and communications technology (ICT) to deliver healthcare, and to capture and store patient information. This audit assessed whether Victorian public health services' ICT security practices effectively protect patient data.
Briefing paper
Data communities: a new model for supporting STEM data sharing
Drawing on Ithaka S+R findings and the scholarly literature, this paper identifies what constitutes a data community and outlines the most important features by studying three success stories, investigating the circumstances under which intensive data sharing is already happening.