Report

Ethics, consent and data sharing

29 Mar 2012
Description

Sharing of research data that relates to people can often be achieved using a combination of obtaining consent, anonymising data and regulating data access.

This guide is intended for those engaged in research involving human subjects which is subject to ethics approval, and for those with a role to play in the Human Research Ethics Committees which oversee the research. Research institutions provide extensive guidance to researchers about ethical issues and requirements.
This does not always include information about the relationship between ethical research and data sharing, and how data can be shared ethically and legally. This guide is intended to go some way to filling that gap.

Publication Details
Language: 
English
Published year only: 
2012
336
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