Despite the severity of motor neurone disease (MND), people with MND face a fragmented and inequitable system of care. A major driver of inequity is an age-based divide in funding. This report aims to guide policy decisions that enhance care, support and quality of life for people living with this condition and their carers.

In 2024, more than 17,500 children aged 8-12 years across South Australia took part in the annual Commissioner’s Student Voice Postcards initiative. Their responses provide clear insight into their lives, including the conditions which shape them. They also expose patterns of systemic challenges that must be addressed.

Hypophosphatasia (HPP) is a genetic, multisystem condition that impairs the body’s ability to properly mineralise bones and teeth. Through the lens of HPP, this report illustrates how Australia’s healthcare system remains unfit for people with rare diseases. It presents a clear case for targeted, achievable reforms to improve diagnosis, treatment access and care coordination for...

This report looks at the relationship between health problems and legal problems. It finds evidence shows people with long-term illness or disability and/or mental distress have worse outcomes, with health and legal problems tending to reinforce each other.

This report highlights the impact of extreme heat, fuelled by climate change, on Australian families. It presents survey findings that show widespread parental concern, and calls for urgent action from elected leaders to phase out fossil fuels and transition to renewable energy, emphasizing that climate change is a major electoral concern for parents.