Data collection platforms
Discussion paper
Reality check - reliable national data from general practice electronic health records
Since 1998, data about general practice activity in Australia has been collected, analysed and disseminated through the Bettering the Evaluation and Care of Health (BEACH) program. BEACH has provided valuable information about how general practice has changed over time, the impact of policy on practice and general practitioner (GP) professional development, and is the most...
Article
Managing to outcomes: what, why and how?
Measuring the things that matter most is only part of the story; real change comes through building a culture that understands how to use this data to manage to outcomes. Five key reasons for managing to outcomes are: to sustain or grow funding, to improve the lives of beneficiaries, to find new ways of addressing...
Report
Building digital trust: the role of data ethics in the digital age
The digital economy is built on data—massive streams of data being created, collected, combined and shared—for which traditional governance frameworks and risk-mitigation strategies are insufficient. In the digital age, analyzing and acting on insights from data can introduce entirely new classes of risk. These include unethical or even illegal use of insights, amplifying biases that...
Journal article
The FAIR Guiding Principles for scientific data management and stewardship
This paper endorses the FAIR Data Principles. The intent is that these may act as a guideline for those wishing to enhance the reusability of their data holdings. The FAIR Principles put specific emphasis on enhancing the ability of machines to automatically find and use the data, in addition to supporting its reuse by individuals.
Report
Making the count: addressing data integrity gaps in Australian standards for collecting sex and gender information
The 2016 Standard for Sex and Gender Variables has yet to incorporate some key recommendations made to the Australian Bureau of Statistics (ABS) by the National LGBTI Health Alliance (the Alliance) and participating community organisations. After three years of direct engagement with the ABS, our Manager of Research & Policy, Dr. Gávi Ansara, explains the...