Understanding the perspectives of individuals who have a vision impairment is necessary to develop meaningful interventions, policies and practices. However, too often these individuals have limited access to research opportunities and health information due to the inaccessibility of information.

This paper shares learnings from research and co-design activities undertaken to identify research priorities for people with a vision impairment. It outlines practical strategies for researchers and clinicians to undertake accessible research and better facilitate information access for individuals with a vision impairment. This will ensure more equitable access to research and clinical information.

Key recommendations

• Build meaningful connections with individuals who have lived experience.
• Shift the focus to people‐first language and a social model of disability.
• Implement strategies to ensure all individuals can fully participate.
• Move away from the default methods of information provision.
• Adapt data collection methods.