Social and public health research should involve the people it will affect. This article finds that while engagement with disabled young people in research is getting better, the reporting of their involvement is not. Essential reporting criteria are proposed to promote research quality by fostering accountability and reproducibility.

People with cognitive disability express dissatisfaction in varied ways, often missed by support workers. This study shows complaints can be verbal, behavioural or silent, and effective support relies on mutual recognition and broader understandings of “complaining.” Improving awareness and responses is essential, and further research is needed to understand what helps or hinders people and...

This paper explores tensions navigated by researchers and project leaders when involving people with disability as experts in co-design and in the core team. Part of an evaluation aiming to improve paid employment of people with intellectual disability is used to consider this work.

This article reports findings from the first set of qualitative data from a study aimed to further understand practices of decision support for people with cognitive disabilities and assess the impact of training supporters in an evidence-based practice framework.

This paper reports on recent research that explored the role of relationships with paid support workers in strengthening the rights and wellbeing of young people with cognitive disability in Australia.