Lived experience

NARROWER TERMS

Lived experience refers to a representation of the experiences and choices of a given person, and the knowledge that they gain from these experiences and choices. [Wikipedia]



Guide

Loss of motivation in dementia: a guide for carers

This resource is for anyone who lives with, or provides care to, a person living with dementia. It was co-developed with people living with dementia, as well as carers and former carers of people with dementia, who are members of the Sydney Dementia Network-Lived Experience...
Case study

Learning from Leeton: a case study of refugee settlement in rural Australia

This publications outlines the findings from an in-depth case study of one rural community’s experience of settling Hazara people from refugee backgrounds. It provides analyses of secondary data, alongside qualitative empirical research with Hazara individuals and members of the broader Leeton community.
Survey

Setting an agenda for disability research in Australia: survey results

This report presents the results of a survey completed by 973 people with involvement or interest in Australian disability research. It is part of multi-phase research agenda setting exercise that has been conducted to understand existing disability research in Australia and consult with the disability...
Report

Setting an agenda for disability research in Australia: synthesis and refinement

This report presents findings from the third phase of the research agenda development project funded by the National Disability Research Partnership (NDRP).
Report

Setting an agenda for disability research in Australia: consultation report

This report presents the results of the Phase 2b consultation conducted with 974 individuals from 21 non-government organisations, including service providers and disabled peoples’ organisations, the First Nations-focused National Disability Research Agenda survey and online focus groups and in-depth interviews with people with augmentative and...
Report

'Mental health shapes my life': COVID-19 and kids' wellbeing 2022

This report captures these experiences and provides recommendations for the meeting the mental health and wellbeing needs of children affected by the COVID-19 pandemic in Australia. Each recommendation related to the priority areas of the National Mental Health and Wellbeing Pandemic Response Plan, as well...
Report

Developing Lived Experience Outcome Indicators

This document presents the key learnings from discussions about engaging lived experience experts and representatives to inform the development of Lived Experience Outcome Indicators, in the context of publicly-funded mental health and alcohol and other drugs (AOD) services in Western Australia.
Report

Being Gen Vape

This research explores teenagers’ knowledge, perceptions, beliefs and attitudes, and the interpersonal and contextual influences on vaping amongst the young cohort referred to as 'Gen Vape'.
Briefing paper

Integrating shared care teams into cancer follow-up care models

This paper highlights the gaps in knowledge relating to the implementation of shared care cancer follow-up models in Australia. It focuses on some of the key considerations for implementing shared care, including the need to collect primary care data and link this to patient health...
Working paper

Serving citizens: measuring the performance of services for a better user experience

Societies are changing fast, driven by population ageing, climate change adaptation, digitalisation and the changing world of work, among other trends. Governments face the challenge of investing to adapt to these trends, while continuing to ensure that public services remain accessible, responsive and of good...
Report

"They thought it was safe - but it wasn't"

This report makes policy recommendations designed to enhance children’s safety by bringing the Australian family law system into alignment with children’s rights. It illustrates its case for reform with the findings of a multiple case study project comprising seven in-depth interviews with adult survivors of...
Guide

Doing research inclusively: co-production in action

This guide has been developed for academic researchers at UNSW Sydney and beyond, people with lived experience of disability, disability organisations, and other stakeholders who understand and appreciate the importance of co-producing research together with people who have lived experience of disability.
Report

2022 Emerging issues: Community Consultation and Engagement Forum report

This report highlights that despite the impacts of the COVID pandemic on the lives of people living with HIV in NSW, there remains a resilience within the community and a strong desire to seek out options to move towards improving their quality of life.
Report

Understanding the lived experience and benefits of regional cities

This research investigates the lived experience of regional city residents (in five case studies) to understand how the benefits and disadvantages of regional city life are perceived and explore attitudes towards population growth.
Conference paper

Social housing tenants’ lived experiences in Australia: an infrastructure of care?

This paper uses data collected from qualitative in-depth interviews with social housing providers and tenants in four Australian states, to highlight their experiences about the extent and ways in which an ethic of care is involved in life in social housing.
Journal article

Threats to valuing diverse voices in public debates about disability. A case study from social media

This study aimed to highlight the threats that use of social media poses to valuing diverse voices and different kinds of expertise about disability in public debates by exploring how disability advocates responded on social media to the evidence presented by researchers to the Royal...
Report

Report on public hearing 13: Preventing and responding to violence, abuse, neglect and exploitation in disability services (a case study)

Public hearing 13 examined the experiences of a group of people with disability living in disability residential accommodation in western Sydney provided by a non-government disability services provider, Sunnyfield Disability Services.
Report

National plan victim-survivor advocates consultation: final report

Violence against women is a national crisis in Australia. The federal government is presently developing the next national plan to end violence against women and children. This report report reveals that systems improvements are needed to appropriately respond to the issue, with many victim-survivors experiencing...
Report

Giving voice to the silenced victims: a qualitative study of intimate partner femicide

The aim of the study is to add to the current evidence base around intimate partner femicide (IPF) victimisation by focusing attention on the nature of the relationship and the woman’s attempts at help-seeking, as told by their loved ones.
Report

Young women’s report 2022

This report's findings emphasise the prevalence of violence and abuse in young people’s lives, along with the inadequacy of institutional responses to violence against young women and non-binary people.