What's important to us in health research? Establishing national health research priorities through a co-design process
| Attachment | Size |
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| What's important to us in health research? | 4.67 MB |
| What's important to us in health research? (easy read) | 3.29 MB |
For a long time, research about disability has been controlled by people who don't have disabilities. This report describes a co-design process to find out what health issues matter most to people with intellectual disability in Australia. The findings are intended to help guide which health research topics should be prioritised in the future.
The project involved interviews with 16 researchers with intellectual disability about their experiences and views on health research and a national art competition where 49 artists with intellectual disability submitted 60 artworks about the question: 'What health issues matter most to you?' The art-based research method was chosen because it is inclusive and allows entrants to communicate in different ways using different types of art.
The research identified three overarching themes:
- Lived experience, narrative and identity.
- Person-centred care, autonomy and self-determination.
- We are only just scratching the surface and there is a lot more to know about the unmet needs of people with intellectual disability.
Other themes that emerged were wellbeing; communication and health literacy; accessible and inclusive health system practices; health promotion and medical conditions. The report notes prioritising the research areas in order of importance will require further work. The findings also offer clear guidance for inclusive research approaches.
