Lived experience
Alternative labels
Living experience
Description
Lived experience refers to a representation of the experiences and choices of a given person, and the knowledge that they gain from these experiences and choices. [Wikipedia]
Report
Global status report on neurology
Neurological conditions affect over 1 in 3 people worldwide. This report on neurology presents the first comprehensive global assessment of the public health response to neurological disorders under the Intersectoral Global Action Plan on epilepsy and other neurological disorders (IGAP). The report offers recommendations for policymakers, IGAP partners and the global neurology community.
Guide
Building workshops: for lived experience collaboration
As part of a project to understand how, why and under what conditions lived experience collaborations have impact in mental health research, this guide captures learnings from co-developing and running a consultation workshop. It identifies five key practices and is intended to provide practical advice for others who may be planning and hosting workshops.
Report
Include me, don't exclude me: the experiences of children and young people who have been suspended or excluded from Queensland state schools
This report explores and highlights the experiences of children, young people and their families who have been affected by School Disciplinary Absences (SDAs) involving suspension or exclusion from Queensland state schools. It finds that SDAs can be discriminatory with some cohorts of students receiving SDAs at a higher rate than average.
Journal article
Co-designing with adults with acquired neurological disability in the community: a scoping review and thematic synthesis
This scoping review examines how and when co‑design is used with adults with acquired neurological disability and their lived experience. It finds co‑design remains under‑researched and underutilised, yet is meaningful, supporting participation, connection, belonging and learning. Future work should better define co‑design and invest in facilitation roles.
Report
Insights on refugees with disability in Australia
This report explores the lived experiences of newly arrived refugees with disability in Australia. It points to a series of intersecting issues that both contribute to and hinder their settlement and integration. It focuses on their experiences in relation to social connections, functional dimensions of integration, and rights and responsibilities.