Data collection platforms
Briefing paper
Data collection for community-based allied health chronic disease management
This paper argues that there is a lack of digital infrastructure to support the collection of allied health data. The authors suggest that development and implementation of nationally consistent clinical terminology for data entry, software interoperability standards for data exchange and sharing, and support for organisational adoption of new digital health technologies are required.
Report
Combining crowds and machines
New technologies, including artificial intelligence (AI), allow us to mobilise human intelligence in new ways and at greater scale. The COVID-19 pandemic has demonstrated the many uses of collective intelligence: from symptom-tracking apps to open-source production of medical equipment. But despite its potential, collective intelligence is still a nascent area for research funding and is...
Guide
Shaping the future of health and healthcare: leapfrogging with precision medicine
This guidance document offers a collection of case studies and set of questions to prompt deeper discussions about ethical tensions pertinent to the collection and use of genomic data.
Report
Enhanced access to publicly funded data for science, technology and innovation
This report presents current policy practice to promote access to publicly-funded data for science, technology and innovation, as well as policy challenges for the future. It examines national policies and international initiatives, and identifies seven issues that require policy attention.
Report
Data is dangerous: comparing the risks that the United States, Canada and Germany see in data troves
From posting photos and videos, to tracking physical activity, apps can do almost anything, but while they may seem like harmless fun, they may also pose a threat to personal data and national security. This paper compares the different responses of the United States, Canada and Germany to data risks posed by popular apps such...