Social and public health research should involve the people it will affect. This article finds that while engagement with disabled young people in research is getting better, the reporting of their involvement is not. Essential reporting criteria are proposed to promote research quality by fostering accountability and reproducibility.

This project seeks to improve disability data collection following the Disability Royal Commission’s call for consistency across surveys and services. Findings suggest that a strong conceptual framework and minimal question set can produce detailed, nationally consistent data. Further consultation, refinement and testing are needed for implementation.

The purpose of the project was to create clarity around what is needed for disability representative and carer organisations, disability advocacy organisations and other consumer-led and disability capacity strengthening organisations. To be able to be meaningfully involved in disability, involvement of these organisations is crucial across the research continuum.

This inclusive research guide educates and supports researchers on how to design, conduct, analyse and communicate research using the National Disability Data Asset (NDDA). It outlines principles and practices for conducting inclusive research using administrative data including disability-specific considerations, trauma-informed research, co-design and intersectionality.

This paper reports on an evaluation of ethical practices and systems in Aboriginal and Torres Strait Islander health and medical research. Led by two Aboriginal women, the work upholds Indigenous methodologies and methods to offer truth-telling and calls to action from Aboriginal communities. The authors call for improved implementation and conduct of culturally safe and...